Friday, October 19, 2012

Caden Cardiologist Update

I think y'all probably knew (cause I told you a few or ten times) that we brought Caden to the cardiologist for the first time in six months yesterday morning. I cannot tell you how much I appreciate all your prayers and support and love.

The night before his appointment I was feeling inexplicably paralyzed by fears and a lack of peace about the whole thing. In fact, just thinking about it made me want to throw up. I dont really know why, except that maybe I have some unresolved issues and fears and memories from the time we spent with Caden in the hospital. And it's also a jarring reminder that even when life with Caden has seemed SO normal the last six months, he still has cardiologist appointments and things aren't REALLY completely normal. He will have more surgery, we need to keep an eye on him. And that's a hard thing to remember when we look at our silly little boy and his sweet little heart.

When Adam and I talked as we lay in bed that night about how we felt and what we thought they were going to say, we both agreed that we felt like they were going to say everything was fine. But that we were also afraid to fully let ourselves think or believe that. Anyways, we spent some time praying and surrendering our fears, and Caden, into the arms of a loving and patient Father.

So the appointment itself was LONG (like three hours long) and felt physically and emotionally exhausting as we chased Caden around and tried to entertain and quiet and keep him still while he missed his morning nap and was poked and prodded and measured.
The news was basically exactly what we expected; in other words, really good. He is doing really well, his heart function is good right now and everything looks just as they expected it to look. His murmur is a little louder (which, however, seems like a very subjective matter to me), and his pulmonary valve (as expected) is definitely going to be the next area of concern and why he will need more surgeries down the road. The doctor said, however, that it should be a few years before we need intervention, and that we can go six more months before coming back to the cardiologist!

Caden's cardiologist is a little bit all-over-the-place and I dont feel like I really got a very clear prognosis, however. During the echo he kept saying we were done and then he would see or hear something that made him want a closer picture so poor Caden kept getting dressed and undressed and I wasn't really sure what was going on. I think we might try and meet with a different cardiologist in the practice next time who hopefully wont be quite as confusing. So pray for wisdom in that too.

Thank you all again for your prayers and love and encouragement for me and our family and especially for Caden. Continue to pray for his little heart, and that we will keep enjoying many more normal years with our sweet little man.

14 comments:

  1. God is oh so good! Praying for y'all!

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  2. Thanks for sharing the good news! The picture of Caden covered in leads is absolutely adorable.

    By the way, we LOVED Samuel's cardiologist (as do all the other parents who have him -- we know quite a few). But I'm sure it would mean changing practices, which I can imagine you're not keen on. If you want his info, let me know.

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  3. What a patient little baby! I'm so glad to hear the news :-) Thanks for the update!

    Amelia @Eslmarriage.com

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  4. What good news! Sorry you had such a weird experience with the Dr. though. Sometimes they act like things are no big deal, and uh, IT IS when it's your baby!

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  5. Praise God for the good report! Thank you Lord!

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  6. Yesterday was our day for the cardiologist too. Glad to hear the good report and for a 6 month follow up. I'm praying for peace for you, wisdom and discernment for the doctors, and for little Caden and that God will continue to bless him immeasurably beyond what we can ever imagine. Eph 3:20.

    Sending a big heart mommy hug to you.

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  7. So glad everything went well - I sooo understand that fear before the appointments, especially when you go so long without anything "heart". I will pray for your discernment on your cardiologist. I had something similar with my "Q's" where things just didn't feel quite right - like he just wasn't for us. Luckily God worked it out that he transferred to a different institution, so then we got in with a great one. And I have soooo much peace with her. It's so critically important to understand what they are saying and have complete confidence. Blessings to you all and here's to another 6 months!!

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  8. I can't believe we were at similar cardiologist appointments for our sweet babies. Their hearts are how I first met you and I will always think that's special.

    I am so, so happy to read that Caden won't have to go back for another six months. That's a blessing.

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  9. I’m one of those weird people who like to read a person’s first few posts (to see why they started blogging) before committing to following/stalking. Needless to say you sucked me in and I’ve just finished reading the whole thing! (I started by admitting I’m weird.) On top of enjoying a well written, open and honest look at your life, it has been an inspiration to watch your ministry unfold, to witness your courage and willingness to be led by God, and observe your faith through struggles. I’m hooked!

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  10. So great that he got such a good report. I just wrote about how much I hate appointment day. Gabe still has to go every 2-3 months though.

    Are you going to Sibley? I was just starting to wonder if I should be seeking out second opinions on Gabe. I love our cardiologist but she is telling us that transplant is likely our only option. I wonder if I'm supposed to ask more then one doctor??? All of this is so confusing! Thank goodness for the support from other Heart Mamas.

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  11. Happy you got good news today. I hope you are shown which way to go with Caden's doctor. Trust and ability to communicate are so very important in his situation.

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  12. That is wonderful news!!! I'm so grateful for the good report!

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  13. Girl. I can't count how many times in the past year I've seen my 6'2" heart-attack surviving, anxiety-enduring husband with those EKG wires strapped to his chest. I pretty much hate them. But my heart nearly stopped seeing them on your beautiful baby boy. Praying for his heart and for YOURS as you walk through this journey with him. Love you!

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  14. thanks for the update, great news! We continue to pray

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